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Not seeking medical advice, but can you help me with describing a symptom

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Bossy Monkey Donating Member (1000+ posts) Send PM | Profile | Ignore Sat May-23-09 10:06 PM
Original message
Not seeking medical advice, but can you help me with describing a symptom
or rather, can you tell me if my description of a symptom makes sense? Before I quit gluten, I often and increasingly had the sensation that my entire circulatory system was a big bruise. Everything hurt, but very slightly. It was ultra-odd. Does this make sense? Unfortunately, that sensation is now back. What I suspect is that I was on the verge of full-blown diabetes, and that the weight-loss and increased exercise after quitting gluten caused it to recede, but that now my genes have caught up to me. (My dad and one of my brothers are both sufferers.) Alternately, it might be a celiac-related symptom and I may have gotten some contaminated millet. (I ate millet couscous for each of the last five days and felt odder every day.) Has anyone experienced or even heard of such a symptom? Any suggestions on how better to word it? I'm also posting this at celiac.com, so I ought to get an idea from them if it might be a gluten-related thing. Thanks in advance.
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carlyhippy Donating Member (1000+ posts) Send PM | Profile | Ignore Sat May-23-09 11:52 PM
Response to Original message
1. is it nerve related pain?
may be fibromyalgia
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Bossy Monkey Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-24-09 08:44 AM
Response to Reply #1
2. I don't think so, and I'm thrilled to say it's gone away again
so now I suspect that it must have been gluten-contaminated millet, and I won't be buying from the bulk bin again. But thanks for the reply and the suggestion; I'll go look it up.
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tavalon Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-24-09 09:28 AM
Response to Original message
3. I have Celiac Sprue
When I have a gluten accident, I ache all over, especially in my joints. I feel like one big bruise.
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Bossy Monkey Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-24-09 11:57 AM
Response to Reply #3
4. Sorry you have it, but glad I'm not the only one
I don't think there was any joint involvement, but big bruise is definite. Seems to be over, I'm glad to say. I think I have learned not to buy my millet (or anything) from the bulk bins. Is it safe to keep the pot that I cooked the millet in? I used it again for my spaghetti sauce last night; no further problems.
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tavalon Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-24-09 01:19 PM
Response to Reply #4
5. The pot is safe, the bulk bins, as you've learned, are not
I've been gluten free for so long now, I only hazily remember the days before, but I know that I was a chronic ibuprofen eater before and it's nice to be free of the chronic pain I lived with while undiagnosed. Also good to no longer be chronically anemic.
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Bossy Monkey Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-24-09 07:11 PM
Response to Reply #5
6. When I was 21, suffering from anemia, I went to Student Health at Penn
The person I saw suggested that I was anorexic. When I said that I most certainly was not, she told me to gain 10 pounds in a month. I had a very fun month and came back 10 pounds heavier, and she sent me along on my way. I wish I'd insisted on further tests. Ah well; only wasted 24 years...
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tavalon Donating Member (1000+ posts) Send PM | Profile | Ignore Sun May-24-09 08:02 PM
Response to Reply #6
7. Unfortunately, here in the US, Celiac is the last thing they think of
In Europe, it's one of the first things they check for when presented with vague symptoms.
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