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linazelle (1000+ posts) Send PM | Profile | Ignore | Wed Mar-15-06 11:09 PM Original message |
Lupus: Anyone familiar with it? My 11 year old niece was just diagnosed |
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liberalnurse (1000+ posts) Send PM | Profile | Ignore | Wed Mar-15-06 11:13 PM Response to Original message |
1. I never heard of it with children.... |
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gordianot (1000+ posts) Send PM | Profile | Ignore | Wed Mar-15-06 11:13 PM Response to Original message |
2. I have had two family members die with this disease. |
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thinkingwoman (1000+ posts) Send PM | Profile | Ignore | Wed Mar-15-06 11:15 PM Response to Original message |
3. get 2nd, 3rd, and 4th opinions... |
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liberalnurse (1000+ posts) Send PM | Profile | Ignore | Wed Mar-15-06 11:15 PM Response to Original message |
4. Here is a quick link. |
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Karenca (1000+ posts) Send PM | Profile | Ignore | Wed Mar-15-06 11:17 PM Response to Original message |
5. There are 2 kinds of lupus |
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Warren Stupidity (1000+ posts) Send PM | Profile | Ignore | Wed Mar-15-06 11:20 PM Response to Original message |
6. The kidney disease is part of the syndrome |
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Karenca (1000+ posts) Send PM | Profile | Ignore | Wed Mar-15-06 11:24 PM Response to Original message |
7. Cutaneous lupus erythematosus affects the skin. |
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linazelle (1000+ posts) Send PM | Profile | Ignore | Wed Mar-15-06 11:28 PM Response to Original message |
8. Thank you all--especially for the info on 2/3/4 opinions and not |
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libodem (1000+ posts) Send PM | Profile | Ignore | Wed Mar-15-06 11:37 PM Response to Original message |
9. sorry to hear about your niece |
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linazelle (1000+ posts) Send PM | Profile | Ignore | Thu Mar-16-06 12:11 AM Response to Reply #9 |
15. Thanks for the warning about the bevy of info. I appreciate it. n/t |
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Dover (1000+ posts) Send PM | Profile | Ignore | Wed Mar-15-06 11:41 PM Response to Original message |
10. A friend of mine had it. She was miserable and gained so much |
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linazelle (1000+ posts) Send PM | Profile | Ignore | Wed Mar-15-06 11:47 PM Response to Reply #10 |
11. Sounds like a macrobiotic diet. That is good to hear--that diet can |
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Dover (1000+ posts) Send PM | Profile | Ignore | Thu Mar-16-06 07:24 AM Response to Reply #11 |
20. Kids and food....lol! Yep that's a tough one. However I'm certain it |
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pnwmom (1000+ posts) Send PM | Profile | Ignore | Thu Mar-16-06 02:09 AM Response to Reply #10 |
19. Lupus can be related to gluten-intolerance as well, |
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Dover (1000+ posts) Send PM | Profile | Ignore | Thu Mar-16-06 08:10 AM Response to Reply #19 |
21. Yes, that's what my friend discovered, and cut out those grains completely |
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pnwmom (1000+ posts) Send PM | Profile | Ignore | Thu Mar-16-06 08:58 AM Response to Reply #21 |
22. Rice, corn, potatoes are probably the major ones left. And natural food |
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Mend (1000+ posts) Send PM | Profile | Ignore | Thu Mar-16-06 12:00 AM Response to Original message |
12. The Lupus Foundation of America has a special section |
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linazelle (1000+ posts) Send PM | Profile | Ignore | Thu Mar-16-06 12:12 AM Response to Reply #12 |
16. Thank you. nt |
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Warpy (1000+ posts) Send PM | Profile | Ignore | Thu Mar-16-06 12:02 AM Response to Original message |
13. It used to be fatal |
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linazelle (1000+ posts) Send PM | Profile | Ignore | Thu Mar-16-06 12:10 AM Response to Reply #13 |
14. Thank you for the in-depth information. n/t |
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beyurslf (1000+ posts) Send PM | Profile | Ignore | Thu Mar-16-06 12:17 AM Response to Original message |
17. My aunt has lupus. She has had it forever (as long as I can remember) |
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GoldenOldie (1000+ posts) Send PM | Profile | Ignore | Thu Mar-16-06 12:41 AM Response to Reply #17 |
18. Also check for a local Lupus support group |
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philb (1000+ posts) Send PM | Profile | Ignore | Fri Mar-17-06 12:12 AM Response to Original message |
23. Lupus is an autoimmune condition, testable and treatable, usually curable |
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beam me up scottie (1000+ posts) Send PM | Profile | Ignore | Fri Mar-17-06 12:53 AM Response to Reply #23 |
24. So you're willing to take responsibility if someone follows your advice |
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philb (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 03:57 PM Response to Reply #24 |
25. You apparently didn't understand what I said. Lupus is documented to be |
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beam me up scottie (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 07:07 PM Response to Reply #25 |
28. Still trying to pretend quacks can cure incurable diseases I see. |
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philb (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 08:32 PM Response to Reply #28 |
30. Nothing I suggest is alternative med, and its documented to work |
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beam me up scottie (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 08:42 PM Response to Reply #30 |
31. You have NEVER provided evidence that any of these treatments work. |
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philb (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 08:55 PM Response to Reply #31 |
34. You are the one diverting attention by talking about Hulda, she has nothi |
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beam me up scottie (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 09:00 PM Response to Reply #34 |
35. You have no credibility. |
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Warpy (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 11:27 PM Response to Reply #25 |
40. The only truth to your statement is that it's an autoimmune condition |
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BuddhaGirl (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 04:04 PM Response to Reply #24 |
26. oh brother LOL |
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beam me up scottie (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 07:59 PM Response to Reply #26 |
29. I know all about his "alternative" cures for cancer, AIDS & other diseases |
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philb (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 08:43 PM Response to Reply #29 |
32. Does that mean you should be prosecuted? What are you suggesting? |
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beam me up scottie (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 08:49 PM Response to Reply #32 |
33. Funny, I thought you were an engineer. |
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BuddhaGirl (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 09:55 PM Response to Reply #29 |
36. umm...merely your opinion |
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beam me up scottie (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 10:12 PM Response to Reply #36 |
37. First of all, not ALL alternative treatments are the same. |
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philb (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 10:29 PM Response to Reply #37 |
38. Actually, you have it backwards. The clinics cited are very pretegious |
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beam me up scottie (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 10:34 PM Response to Reply #38 |
39. You have no credibility. |
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philb (1000+ posts) Send PM | Profile | Ignore | Sat Mar-25-06 01:40 AM Response to Reply #39 |
41. I'm listed in Who's Who in America, are you |
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beam me up scottie (1000+ posts) Send PM | Profile | Ignore | Sat Mar-25-06 01:43 AM Response to Reply #41 |
42. You claim Zappers cure cancer and AIDs. |
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philb (1000+ posts) Send PM | Profile | Ignore | Mon Mar-27-06 01:10 AM Response to Reply #42 |
43. I provided peer-reviewed documentation; thats science |
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beam me up scottie (1000+ posts) Send PM | Profile | Ignore | Mon Mar-27-06 01:17 AM Response to Reply #43 |
44. Parasites don't cause AIDS and cancer. Zappers don't cure AIDs and cancer. |
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HysteryDiagnosis (1000+ posts) Send PM | Profile | Ignore | Sun Mar-19-06 05:20 PM Response to Original message |
27. Visit the LupusLady's site. n/t |
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DU AdBot (1000+ posts) | Thu Dec 26th 2024, 05:07 PM Response to Original message |
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