"Lili Rachel Smith, 15, died Saturday of natural causes. Born into a family steeped in politics, Lili became a dedicated and outspoken activist for social and political issues at a very young age.
Although she was born with Apert's syndrome - a congenital disorder characterized by malformations of the skull, hands and feet - Lili required extensive and often painful surgeries at birth and at regular intervals during her life, her advocacy reached far."
http://www.examiner.com/examiner/x-19093-Seattle-Special-Needs-Kids-Examiner~y2009m10d16-Lili-Rachel-Smith-political-and-social-activist-advocate-dies-at-15Check out the link to read quotes and see photo of Lili with the "big dog" himself, Bill Clinton.
RIP Lili