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and feel this is a good sounding board, even if no one reads it. My Dad / hero / person I admire more than anyone else in the world is seriously, possibly chronically ill. I have 8 brothers and sisters, 7 who see him occasionally, like twice a year. I've been running him for four years now for everything from diagnostics 3 hours away to treatments 3 / 4 days a week. The 7 absent siblings are now 'stepping up', angry that not enough has been done. They are putting down my brother and I who have taken sometimes weeks at a time off work, scoured every specialist on the internet and seen more of them we can count. All of a sudden, they know it all, if only we'd done this, or taken him here ............ well, we've taken him everywhere we can think of and every day talk about what else we shoudl be doing. The thought of losing him is killing me. I know the fear they're now feeling, we've been feeling it from the start. It's just really hard. Not sleeping for 4 / 5 days at a time with worry is messing me up and I'm about to tell them all to KMA, but that would make things worse for Dad. I guess I just need to drum up a bit more strength to deal with the criticizing, backstabbing stuff, but it's hard. If you haven't stepped up or bothered to worry yourself or sacrifice a trip or two to see him, it's not fair at all to make those of us who have feel guilty and to blame. We've tried so hard, this is driving me back into deep, deep depression at a time I need to be strong. I am also an EMT / Paramedic Basic but suddenly, they're all experts on his very rare condition and what I or my brother looking after him say, means nothing. These siblingss are the ones who've all moved away years ago and see my Dad at weddings and holidays only. Of course they're worried, but I see my family falling apart and can't do a thing about it. Sorry for the rant. No concentration right now to do anything tonight and just felt like venting something, somewhere ....
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