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Edited on Wed Jan-24-07 02:30 PM by nashville_brook
second thing, i'm totally there with ya. after months of awfulness, i just had 3 straight days of relative ease with the pain and then, wham! today i'm flat on my back again. i was having delusions of returning to a healthy life (wow, the CoQ10 must be working miracles!)
all i can do with any regularity is read and write -- and so that's where i'm keeping my dreams.
to the family -- i completely understand this. what little family i have left (an aunt and unlce) are liberal dems, and i'd still rather gouge my eyes out and bury them in the backyard than live with them. i love them, but they make me crazy. that's what family does.
lately i've "dreamt" about my "chronic" utopia. as in, wouldn't it be nice if there were a place -- a neighborhood or a farm or an apartment building -- where chronic folks could live communally. first off, it would be nice just to be around other people who understand. secondly, we need a cheap living situation where there's a reduction in physical chores and support for our conditions.
since my marriage broke up i've been sleeping on couches and living bascially on the goodwill of friends. i tried to keep an apartment for a while, but the only place i could "afford" that would accept my dogs, was dangerous, dirty and had no heat or ac. we had a couple of cold snaps and i thought i was going to die. i couldn't move (my illness involves lots of joint and bone pain). i had no furniture. no bed. was sleeping on a $25 thrift store couch and the people below me were dealing drugs. after rent and electricity i had about a $100 for the month and my meds cost about a $100 bucks a month. the drug dealers were bringing ME food from the mission. there were prostitutes and homeless people skulking around the property all hours of day and night. i was scared to death every time i walked the dogs. the police came more often than the postman. i tried to keep my chin up, but most days were just hell. most nights were worse. so yeah -- living on your own is nearly impossible. there has to be a better way.
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