Please read this...your loved ones' lives may literally depend on it.
If you're looking for a reason to be outraged, look no further than the state of Texas where patients can be legally euthanized by hospitals against their will, regardless of their level of consciousness, their ability to pay, and regardless of their decisions to continue medical treatment. The law that allows this is part of the Health and Safety Code. Section 166.046 of that code, the Advance Directives Act of 1999, also known as the "Futile Care Law," allows patients' ethics, religious values, and clear instructions to be discounted to accomodate the ethics of the attending physician. The law not only violates patients' most basic human rights, it also provides blanket protection for hosptials and medical professionals against civil and criminal liability for medical errors, negligence, and financial conflicts of interest, among other issues, while leaving patients without even the barest of basic rights afforded the most vile of convicted criminals.
This is no urban myth. My family experienced this first hand with our sister, Andrea Clark, who was sentenced to die by the St. Luke's "Ethics" Committee (St. Luke's Episcopal Hospital, Houston). It was only by engaging the press and citizens like you that we were able to stop the hospital from removing Andrea from life support against her will. The biggest obstacle we ran into is that people often didn't believe us when we told our story. The law is so glaringly immoral that people just had trouble believing we weren't omitting important information. But Andrea's case wasn't even the most outrageous. When we went to Austin to testify before the House Public Health Committee, we heard similar stories where hospitals had passed death sentences on patients. Of the families that testified, all of them fought the hospital and through their efforts, some of those patients are still living today.
Any family that has had to endure this kind of battle with a hospital while dealing with the stress of a critically ill loved one has been put through hell. This isn't right and it isn't right to euthanize patients against their will. And my family is committed to getting the law changed so that hospitals have to continue to treat the patient until the patient is transferred to another facility.
The Texas Legislature is in session now and there are proposals to change this law. The medical profession is a big lobby with a fat pocketbook. It's up to a bunch of little folks like me and you to oppose those fat cats with bucks--but there are more of us than there are of them. And if you really want to do something to create change in the law, if you REALLY want to stop the monied interests from purchasing your rights, then help us change this law.
What I'm asking you to do is not difficult; all you have to do is write your state senator and/or your state representative, and tell them you want this law changed. You can also write to members of the House Public Health Committee and the Senate Health and Human Services Committee. Tell them to support proposals to amend the law so that hospitals are required to treat patients until they are transferred to another facility. Tell them to oppose any proposals that continue the allowance of hospitals to withdraw life support against the will of patients or their guardians.
I've created a website to make it easy for people to contact their legislators about this. Go to
http://www.texaspatientrights.org On the top right of every page, you'll find links to the House and Senate directories. These directories include tools to help you determine who your own legislators are. (Scroll all the way to the bottom of the Senate directory) Finally on www.texaspatientrights.org site, you can click the menu link for "legislative committee" to find contact information for health committee members. You can call your legislators, write to them snail mail, or go to their websites via the legislature directories to email them.
Another very important thing you can do is to let people know about this law. If ever you had a hankering to forward an email, please forward this one! One of the most dangerous things about this law is that most citizens of Texas are unaware of it. How can people change a law if they don't even know about it? Tell everyone you know about this law, ask them to take action in notifying others and writing their legislators. Tell people in your church group, your reading group, your line dancing group, your gun club, your rv club; tell your co-workers, tell your family members, tell EVERYONE you know about this law. Write to the editor of your local paper, post about this online, call Oprah, link the texaspatientrights.org website to your website. Do what you can today because tomorrow it might be someone you love or even you who is euthanized in a Texas hospital.
Finally, do your best to protect your own family. If you or someone you love is going into the hospital, ask the doctor where they stand on this issue. Get them to put their stance in writing if you can. Consider finding another qualified doctor if the current doctor isn't willing to uphold your values--it's easier to find another doctor before things get critical, than after-- believe me. Ask the hospital if they've ever invoked Section 166.046 of the Advance Directives Act on patients; if they have, you might want to find another hospital.
Please do what you can TODAY to protect innocent Texas patients. Let your outrage do some good. It only takes a few minutes.
Thanks,
Lanore Dixon