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This is the time when we all have to be good advocates for ourselves.
I'm lucky, I already know the new doctor I'll be having and I've known her for years and will trust her. But I also know she's comfortable with me asking a lot of questions and being in charge of my own care. I'm lucky to have health insurance (for now) that lets me go to one of the top cancer hospitals in the US.
When switching doctors, its so important to know everything about your cancer, what your latest tests show, what treatment you've had, etc. Then don't be afraid to have a visit with the new oncologist just to go over these things, bring them up to date and make sure they're familiar with your patient history.
Remember that all your test results,x-ray films, tumor biopsy samples (for breast cancer, they're called paraffin blocks) medical files, etc. belong to you. Even though they are kept at a doctors office or hospital, they are still your property, so make sure you know where they are and that they don't get lost. In fact, you can go to your old oncologist's office, sign a consent form, pick them up and personally deliver them to your next oncologist's office. You are free to read them, too, and make notes. Every cancer patient should have a copy of their most recent pathology report and should know how to read it.
Thanks for the information about Oklahoma's high risk cancer pool. The concept is a good idea, but the out of pocket costs are unreasonable. Any time you're paying that much for insurance, you should have a choice of doctors.
Also, we cancer patients who are insured through private plans shouldn't take our coverage for granted. One of the bills that Congress tried to pass this year, S. 1955, would have begun the process of unravelling most of the protections and coverage we have in our private insurance plans. It would have allowed our employers or the insurance companies they buy their plans from to suddenly stop covering a lot of things that they're required to cover now - or to put low maximum coverage amounts. Letting legislation like that pass Congress or your own state legislature could turn your own health insurance plan into one like the Oklahoma catastrophic coverage plan overnight.
I'm sure I'm preaching to the choir when I tell all of you that we have to make health care issues our biggest legislative priorities and do all we can to educate our own party of the pitfalls cancer patients face in health care coverage and reform. Unfortunately, there aren't too many groups in Washington DC who advocate for health care issues who really understand what cancer patients need. And don't count on American Cancer Society or the Lance Armstrong Foundation to do it. Both of them have priorities written by doctors or researchers, which don't always address the needs of patients.
Its up to us to educate them, I suppose.
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