Crohn's Disease Research Bill: I Have Crohn's

[CorpGovActivist]

Long-overdue treatments for autoimmune disorders such as Crohn's promise to deliver crossover research breakthroughs in cancer research, infectious diseases, and other more well-known conditions.

By learning how to mediate and - in some cases, repair - immune responses that have run amok, scientists are developing a deeper understanding of how to goose the immune response after cancer therapy, and teaching cells how to combat previously life-threatening viruses.

If you have time, please contact your local Member of Congress and your state's Senators, to ask them to support this modest proposal to enhance the NIH budget for studying Crohn's and related disorders: http://www.google.com/search?as_q=hr+1113+inflammatory&hl=en&num=10&btnG=Google+Search&as_epq=&as_oq=&as_eq=&lr=&as_ft=i&as_filetype=&as_qdr=all&as_nlo=&as_nhi=&as_occt=any&as_dt=i&as_sitesearch=thomas.loc.gov&as_rights=&safe=off

Thank you.

- Dave

[GreenPartyVoter]

1. I have ulcerative colitis. Thanks for posting this.

[CorpGovActivist]

3. I Remember When...

... this statement wasn't true:

food = pain.

; )

- Dave

[Beausoir]

26. My spouse has Ulcerative Colitis. God..what a horrible disease.

Best wishes to you. It's such a terrible disease to have.

[GreenPartyVoter]

28. Thanks. I am lucky. Having kids seems to have improved mine. It

seems to work that way for about 1/3 of women with UC. Now I am more like IBS. Been several years since I had a real UC flare up. :)

[CorpGovActivist]

32. Hope It Stays That Way, and Maybe This Research - If Funded - Will Give Us...

... some answers.

Best wishes,

- Dave

[Daphne08]

37. My oldest son has it, too. It's awful. n/t

[Czolgosz]

2. If you have Crohn's, I hope you are not being pushed to start Remicade treatments

http://query.nytimes.com/gst/fullpage.html?sec=health&res=940DE1D71F3DF932A25757C0A9649C8B63

http://www.caller.com/ccct/local_news/article/0,1641,CCCT_811_5215919,00.html

[CorpGovActivist]

4. The Mouse DNA ...

... in it gave me pause from the outset.

- Dave

[Czolgosz]

6. Who knew the mouse DNA would preclude you from taking chemotherapies which are also based on animal

DNA.

[Name removed]

5. Deleted message

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[Name removed]

27. Deleted message

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[REP]

38. There Is NOTHING You Can Order On-Line to Treat Crohn's or Any IBD

Being a transcriptionist is one thing; I used to typeset a medical journal but that doesn't give me leave to recommend websites selling god knows what to treat a disease that can and does kill. Crohn's and Ulcerative Colitis are serious, dangerous disease and while this advice was undoubtedly meant well, it is not the right thing to recommend to people with a disease that causes their intestines to swell and bleed.

[Gelliebeans]

7. Thanks for this information

I will be contacting them right away. I have had Crohns too for about 14 years. Thanks to the "little bird" who told me about this thread :hug:

[CorpGovActivist]

19. Hope You're Managing It!

To channel Bill: "I feel your pain!"

; )

- Dave

[Name removed]

8. Deleted message

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[Morgana LaFey]

18. a gentle wholebody cleanser

is what I've heard about it, and yes -- also for cancer.

[Name removed]

39. Deleted message

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[Name removed]

9. Deleted message

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[CorpGovActivist]

15. LOL...I've Read about Those...

... and wasn't going to go there on DU.

; )

- Dave

[Canuckistanian]

22. Is this helpful?

I don't know if you read medicalese.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=14499784&dopt=Abstract

[CorpGovActivist]

23. Those Are the Ones...

http://www.google.com/search?hl=en&safe=off&q=helminths+whipworms

I guess I didn't eat enough mud pies growing up.

; )

- Dave

[Gelliebeans]

49. Have you heard about the toothpaste theory?

My doctor told me years ago that the rumor floating around was that Crohns was caused by ingesting too much toothpaste :rofl:

[bobbolink]

10. Will happily call for you--thanx for asking!

So sorry to know you are saddled with this! :(

I appreciate you letting us know how we can help! :toast:

Also, will you call on this for me--and ask everyone you know, pleeez?

http://www.democraticunderground.com/discuss/duboard.php?az=view_all&address=389x394904#402010

THANKS!!!

[CorpGovActivist]

20. Thanks, and You Bet! n/t

[bobbolink]

11. Capitol Hill Toll-Free Numbers! Let's get calling, and share this around!

Toll-Free Capitol Hill Numbers:

800-828-0498

877-851-6437

800-459-1887

800-614-2803

[mmonk]

12. I'm bookmarking this now.

I'll see what I can do Dave.

[bobbolink]

13. That's such a beautiful quotation! Brings up tears for me....

Thanks for that... it is a lonely path.... :hi:

[mmonk]

35. Yep

it's my favorite quote. :hi:

[bobbolink]

50. I sent it to a friend, and she replied that she got goose bumps the size of ostridge eggs!

:)

You have great influence. :hi:

[CorpGovActivist]

16. Thanks! Like the Space Program...

... this research could have spillover effects that could have a much wider reach.

: )

- Dave

[Laurab]

14. K&R - will do

funding is very important. I have an immune-system illness that is not as well known, and several years ago, NIH was given, I think 12 million to do research. Instead, they gave the money away to other programs, and weren't caught for a couple of years. Making sure the funding gets to the right place is VERY important!

PS: Dave, check your pm when you get a chance.

[Cabcere]

17. K&R.

One of my dad's former co-workers suffers from Crohn's, and of course one of my hometown's favorite sons died from Crohn's-related complications. :kick:

[CorpGovActivist]

21. That's Interesting...

... Eisenhower had it, too: http://www.google.com/search?hl=en&safe=off&q=eisenhower+crohn%27s

- Dave

[alfredo]

24. Crohn's since 84. Thanks for the post and link.

[CorpGovActivist]

25. More Than Half My Life Now...

... onset was 88.

I was lucky; I'd done all my growing. I really feel for the little kids who get it, especially when it stunts their growth.

: (

- Dave

[GreenPartyVoter]

29. Yeah. I was 10 when my ulcerative colitis started. Was on prednisone

for ages and I can still remember my check up at 13 when I reported to my doc that I had started my period. There had been some concern that things might have gotten messed up for me.

[CorpGovActivist]

30. What a Happy Drug That Is!

*grrrrrr*

- Dave

[GreenPartyVoter]

34. Yep. I have plaid legs. Stretch marks from prednisone and

varicose veins going the other way

[GreenPartyVoter]

43. I have to admit, though,. that prednisone was the only thing

that kept me from having my colon removed and a colostomy bag stuck on to me when I was 11. So for all it's bad points I can't complain there.

[alfredo]

36. I was in my thirties. They said mine was a moderate case, but I have

been able to handle it. I've only had a few very minor flare-ups, nothing to write home about.

I have a friend with UC and now he has MS. He's OK in the winter, but come summer, he's a mess.

[GreenPartyVoter]

42. My UC always flared up in the spring and we figured out it was

because of final exams. Not just the stress of taking them but the fact hat I am a stay-up-all-night crammer. Lack of sleep is the first thing to set off both my UC and my bipolar.

[alfredo]

47. Sleep is what helped me with my crohn's. It is also helpful

with my arthritis and allergies.

[JesterCS]

31. Crohn's since 97

I hate it, its the most inconvenient disease lol. Though be able to clear a room is fun

[CorpGovActivist]

33. Inconvenient? LOL...

... that's an understatement!

Hope you're managing, and don't forget to call to support this bill!

: )

- Dave

[REP]

40. Marvin Bush Has Crohn's - This One Should Pass

I have Crohn's in the terminal ilieum ... god I hate having anything in common with a Bush!

[LeftishBrit]

41. I've had Crohns since I was 5...

Fortunately, treatment (low-dose steroids and azathiaprine) has worked well in my case. But I definitely think more research needs to be done.

[a kennedy]

44. Sister has crohns, has been in the hospital twice.......

Horrible, horrible disease. Thanks for info and I will call my members of congress.

[Virginia Dare]

45. Thanks for the info Dave and will do!

I have a very good friend who suffers from Crohn's. It's a very insidious and debilitating thing.

[noonwitch]

46. My sister had ulcerative colitis

She had an ileostomy about 4 years ago. It took a long time for her to recover from it, as she had the j pouch procedure done (so she doesn't have a bag). She had chronic infections while healing up from the surgeries, but is finally at the point where she is feeling better. She just can't ever eat nuts or mushrooms again.

She was sick for a long time, from the time she was 18 or maybe even earlier. The doctors at one point diagnosed her with crohn's disease.

[porphyrian]

48. It's about fucking time. - n/t