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He supposedly has Leigh's disease, although all the test results are not in yet and there is no definitive test for the disease. He is in an Austin hospital, run by the Catholic church and this hospital has decided that this little 16-month-old child has no right to further treatment. They've tried to withdraw his feeding, his medications and they've also tried to take him off of the respirator against his mother's wishes. Even if this child does have Leigh's disease, these children can live to be about seven or eight years old.
In Texas, when doctors decide that further treatment of a patient is "futile" then they can unilaterally decide to withdraw all treatment and let the patient die. Even if he or she doesn't want to die and even if the patient's family doesn't want treatment withdrawn. Some of these patients fight, some don't. If they fight, some of them actually manage to get well and go home to their families. Some of them don't, but they are able to die naturally, in their own time.
When a patient is this sick, it should be up to the family or the patient, themselves, to make these kinds of decisions, not a medical professional. When my sister, Andrea, was in this same position, our family went through hell, trying to keep the healthcare people from pulling her plug. This is a time when we should have been able to be with our sister, but we had to, instead, meet with attorneys and picket the hospital.
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