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I have a 19 year old daughter who is only eligible for dependent coverage on my plan as a full time student. All of her critical educational (and career influencing) decisions are being dictated almost entirely by the fact that if she is not a full time student she will no longer have access to health care.
With her current treatment plan, she has approximately $60,000 in medical expenses each and every year - assuming nothing goes wrong. Her illness is an orphan illness; there is currently no accepted medical treatment other than a transplant, and she is not yet eligible because a transplant currently is riskier than living with the declining status quo. The bulk of her expenses are currently being paid by big Pharma because she is patient #9 in a drug trial (the previous trial which started nearly a decade ago finished recently with a total of 14 patients). Come May, the trial will be over, but her need for the medication will not. With only one published study, and a total of 23 patients currently in or completed trials, the $50,000 a year drug may not be available even if she has insurance because it will likely be considered experimental - or at a minimum off denied as off formulary because it is not an approved treatment for her condition. Our ray of hope is that it is an FDA approved drug - and (we hope) she will personally have a record of it being an effective treatment for her.
Her illness has dramatically deteriorated her abilities to perform academically (going from valedictorian of her high school class to having a strong first semester at college last year, to barely making it spring semester, to failing half the hours she attempted this semester).
Previously she tested as gifted in math, and earned 4/5 on the AP chemistry exam (for 8 hours of college credit). She is currently unable to successfully complete courses beyond art, dance, or other similarly less brain intense classes. The courses she is able to successfully complete (in which fields she might be able to complete a major) will not likely lead to a career that will provide access to insurance.
She desperately needs to take time off to see if she can get her health under control and to rethink the direction she would like to/might be able to head with her life. She is permitted to do that only once, only for one year. If she takes the time she needs now, and her need for a transplant occurs while she is still a dependent, she/we will be up a creek without a paddle because she will have used her one time medical leave.
Currently, her prospects for the near future of being able to obtain either a job that provides insurance or a job that pays enough for her to be able to purchase insurance on her own (or pay directly for her medical care) are slim to none.
If I could only stop the clock and keep her 18 forever we would be fine - until she hits the lifetime caps for coverage. Unfortunately, she has moved into that age when most people are expected to be healthy and to be able to purchase insurance for a pittance. No insurance company is going to sell her insurance for a pittance - and it is unlikely that anytime in the near future she will be able to afford more than that.
Meanwhile - I will pay to keep her covered with my last dime - which will soon be a significant annual ongoing cost - at 19, $14,400 a year.
So - I'd say we've been negatively impacted by the current state of access to health care in this country.
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