http://www.barbaraehrenreich.com/cancerland.htmThere is, I discover, no single noun to describe a woman with breast cancer. As in the AIDS movement, upon which breast-cancer activism is partly modeled, the words "patient" and "victim," with their aura of self-pity and passivity, have been ruled un-P.C. Instead, we get verbs: Those who are in the midst of their treatments are described as "battling' or "fighting," sometimes intensified with "bravely" or "flercely" -- language suggestive of Katharine Hepburn with her face to the wind. Once the treatments are over, one achieves the status of "survivor," which is how the women in my local support group identify themselves, A.A.-style, as we convene to share war stories and rejoice in our "survivorhood": "Hi, I'm Kathy and I'm a three-year survivor." For those who cease to be survivors and join the more than 40,000 American women who succumb to breast cancer each year -- again, no noun applies. They are said to have "lost their battle" and may be memorialized by photographs carried at races for the cure -- our lost, brave sisters, our fallen soldiers. But in the overwhelmingly Darwinian culture that has grown up around breast cancer, martyrs count for little; it is the "survivors" who merit constant honor and acclaim. They, after all, offer living proof that expensive and painful treatments may in some cases actually work.
The effect of this relentless brightsiding is to transform breast cancer into a rite of passage -- not an injustice or a tragedy to rail against, but a normal marker in the life cycle, like menopause or graying hair. Everything in mainstream breast cancer culture serves, no doubt inadvertently, to tame and normalize the disease: the diagnosis may be disastrous, but there are those cunning pink rhinestone angel pins to buy and races to train for. Even the heavy traffic in personal narratives and practical tips, which I found so useful, bears an implicit acceptance of the disease and the current barbarous approaches to its treatment: you can get so busy comparing attractive head scarves that you forget to question a form of treatment that temporarily renders you both bald and immuno-incompetent. Understood as a rite of passage, breast cancer resembles the initiation rites so exhaustively studied by Mircea Eliade: First there is the selection of the initiates -- by age in the tribal situation, by mammogram or palpation here. Then come the requisite ordeals -- scarification or circumcision within traditional cultures, surgery and chemotherapy for the cancer patient. Finally, the initiate emerges into a new and higher status -- an adult and a warrior -- or in the case of breast cancer, a "survivor."
My friend introduces me to a knot of other women in survivor gear, breast-cancer victims all, I learn, though of course I would not use the V-word here. "Does anyone else have trouble with the term 'survivor'?' I ask, and, surprisingly, two or three speak up. It could be "unlucky," one tells me; it "tempts fate," says another, shuddering slightly. After all, the cancer can recur at any time, either in the breast or in some more strategic site. No one brings up my own objection to the term, though: that the mindless triumphalism of "survivorhood" denigrates the dead and the dying. Did we who live "fight" harder than those who've died? Can we claim to be "braver," better, people than the dead? And why is there no room in this cult for some gracious acceptance of death, when the time comes, which it surely will, through cancer or some other misfortune?
No, this is not my sisterhood. For me at least, breast cancer will never be a source of identity or pride. As my dying correspondent Gerri wrote: "IT IS NOT O.K.!" What it is, along with cancer generally or any slow and painful way of dying, is an abomination, and, to the extent that it's manmade, also a crime. This is the one great truth that I bring out of the breast-cancer experience, which did not, I can now report, make me prettier or stronger, more feminine or spiritual -- only more deeply angry. What sustained me through the "treatments" is a purifying rage, a resolve, framed in the sleepless nights of chemotherapy, to see the last polluter, along with, say, the last smug health insurance operative, strangled with the last pink ribbon. Cancer or no cancer, I will not live that long of course. But I know this much right now for sure: I will not go into that last good night with a teddy bear tucked under my arm.